Citizen Science: A web portal for patients to transform pain research

 

To view the Citizen Science whiteboard video please click here

 
Citizen Science Email: citizenscience@arthritisresearch.ca

Pain affects many people, but it is complex and poorly understood. No one knows more about pain than the people who live with it. Citizen Science is a social movement that gets the public to join forces with health scientists to learn more about pain. By sharing your experiences and theories about pain on the Citizen Science platform, you can help health scientists ask better questions when they are researching ways to better understand and treat pain.

 

Visit https://patientscientist.ca/pain-survey/ to explore our website and make a contribution

You can sign-up or continue to explore the Citizen Science website as a guest user. On the website, you will go through a series of “levels” each with questions asking you about your pain. When you sign-up, you can complete each of these levels at your own time!

You may be eligible if you:

  • Have a chronic illness or disability
  • Are 19 years of age or older and
  • Live in Canada

 
If you would like to take part in this study or seek more information, please contact:
Stephanie Therrien, on Email: citizenscience@arthritisresearch.ca

 
Funded by the BC SUPPORT Unit, Knowledge Translation and Implementation Science Methods Cluster

 

Principal Investigator: 

Linda Li, Department of Physical Therapy, University of British Columbia (Vancouver); Arthritis Research Canada

Co-Investigators:

Cheryl Koehn, Arthritis Consumer Experts

Delia Cooper, Patient Council, BC SUPPORT Unit

Sunny Loo, Patient Council, BC SUPPORT Unit

Diane Gromala, School of Interactive Arts & Technology, Simon Fraser University

Chris Shaw, School of Interactive Arts & Technology, Simon Fraser University

Alison Hoens, Department of Physical Therapy, University of British Columbia (Vancouver); Arthritis Research Canada

Kimberlyn McGrail, School of Population and Public Health, University of British Columbia (Vancouver)

Leanne Currie, School of Nursing, University of British Columbia (Vancouver)

Erin Michalak, Department of Psychiatry, University of British Columbia (Vancouver)

Research Staff:

Stephanie Therrien, Research Coordinator, Arthritis Research Canada, Vancouver, Canada

Technology Partner:

Tactica Interactive

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