Citizen Science: A web portal for patients to transform pain research

 

To view the Citizen Science whiteboard video please click here

Pain affects many people, but it is complex and poorly understood. No one knows more about pain than the people who live with it. Citizen Science is a social movement that gets the public to join forces with health scientists to learn more about pain. By sharing your experiences and theories about pain on the Citizen Science platform, you can help health scientists ask better questions when they are researching ways to better understand and treat pain.

 

Visit https://patientscientist.ca/ to explore our website and make a contribution

You can sign-up or continue to explore the Citizen Science website as a guest user. On the website, you will go through a series of “levels” each with questions asking you about your pain. When you sign-up, you can complete each of these levels at your own time!

If you would like to provide us with feedback on the website, you can register for an over the phone interview to talk about your experience. If so, you will be given a special link and asked to test the Citizen Science website during a one week period. Then, we will invite you to speak with someone on the Citizen Science team to learn about your experiences using the website – what you like or dislike, and how it can be improved. The interview will be 30 minutes long and conducted over the phone.

 
You may be eligible if you:

  • Have a chronic illness or disability
  • Are 19 years of age or older and
  • Live in British Columbia

 
If you would like to test the website and provide us with feedback, please click on the following link to complete an online questionnaire and get access to the Citizen Science website here

If you would like to take part in this study or seek more information, please contact:
Amrit Sandhu at 604 207 4032 or Email: citizenscience@arthritisresearch.ca

 
Funded by the BC SUPPORT Unit, Knowledge Translation and Implementation Science Methods Cluster

 

Principal Investigator: 

Dr. Linda Li

Co-Investigators:

Diane Gromala, MFA, PhD; Professor, Simon Fraser University

Chris Shaw, MSc, PhD; Professor, Simon Fraser University

Leanne Currie, RN, PhD; Professor, University of British Columbia

Erin Michalak, PhD; Professor, University of British Columbia

Research Staff:

Amrit Sandhu, Research Coordinator, Arthritis Research Canada, Vancouver, Canada

Technology Partner:

Tactica Interactive

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